Venue: Burswood Convention Centre, Perth
"Gaps in Perinatal Research Data; coverag, quality and understanding"
Topic: Gaps in Perinatal Research Data; coverage, quality and understanding
This session will cover a range of issues regarding the use of population-based data collections for perinatal and paediatric epidemiological research.
Coverage: Dr Lee Taylor, Department of Health, New South Wales will discuss gaps in research from a health services perspective.
Quality: Dr Eve Blair will discuss the importance of assessing the quality of statutorily collected data. Statutorily collected data has the epidemiological advantage of being relatively free of selection bias but they are collected for administrative rather than research purposes and validated in small random samples. Her validation study in subjects with suboptimal perinatal outcomes suggests that epidemiological research using such data should attempt to assess its quality (such as completeness of disease recording) in the subjects of their research.
Understanding: Professor Vera Morgan will discuss issues arising, their impact and possible resolutions when using psychiatric register data in perinatal research.
Dr Lee Taylor is the Manager of Surveillance Methods at the Centre for Epidemiology and Research at the NSW Department of Health. Lee is the custodian of the NSW Perinatal Data Collection and the NSW Register of Congenital Conditions and is responsible for managing case reviews of maternal and perinatal deaths in NSW. She has managed the record linkage work in the NSW Department of Health since 1994, and helped to establish the Centre for Health Record Linkage in 2006. Her areas of expertise include maternal and perinatal health, public health surveillance, health information systems, and methods for health data linkage, analysis of linked data, and protecting the privacy and confidentiality of personal health information.
Dr Eve Blair has used epidemiological methods in maternal and child health research for 30 years. Her research interests include the aetiology and management of cerebral palsy, the measurement of appropriateness of intrauterine growth and epidemiological methods. She has no clinical qualifications having studied pure science (chemistry) and philosophy before turning to epidemiology.
Professor Vera Morgan is Head of the Neuropsychiatric Epidemiology Research Unit in the School of Psychiatry and Clinical Neurosciences at The University of Western Australia and Operational Epidemiologist at its Centre for Clinical Research in Neuropsychiatry. She is a psychiatric epidemiologist with a special interest in the epidemiology and aetiology of schizophrenia and other psychotic disorders. Much of her work focuses on the relationship between environmental risk factors and genetic liability in schizophrenia and other neuropsychiatric disorders including intellectual disability. Her expertise includes epidemiological data design, management and analysis, with many years of experience in survey design and analysis predating her work in epidemiology. She is Convenor: Technical Advisory Group for the $6.2m Australian Government National Survey of High Impact Psychosis and is the National Project Director. Her professional roles have included President: Australasian Society for Psychiatric Research, Vice-President: Australasian Epidemiological Association, Chair: Research Committee of the Mental Health Council of Australia and Member: The University of Western Australia Senate.
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