Australasian Epidemiological Association News


Data Legislation Team
Data Sharing & Release Legislation | Office of the National Data Commissioner
Department of the Prime Minister and Cabinet

A Discussion Paper on the Data Sharing and Release (DS&R) legislation is now open for public comment until Tuesday 15 October 2019. The Office of the National Data Commissioner is hosting a roundtable series during September and October 2019 on the Discussion Paper. You can find out more and make a submission through our website. We’d like to hear your thoughts on how our policy thinking has changed based on your feedback through earlier roundtables.

To register, please click the link below to sign up on Eventbrite for the roundtable you’d like to attend:

Perth: Monday 16 September

Broome: Tuesday 17 September

Canberra: Tuesday 17 September

Melbourne: Thursday 19 September

Sydney: Monday 23 September

Adelaide: Tuesday 24 September

Darwin: Wednesday 25 September

Hobart: Wednesday 25 September

Canberra: Monday 30 September

        Melbourne: Tuesday 1 October

Shepparton: Wednesday 2 October

Dubbo: Wednesday 9 October

Brisbane: Wednesday 9 October

Townsville: Thursday 10 October

Sydney: Thursday 10 October

Cairns: Friday 11 October

We would also like to hear your views on how data sharing might impact on Indigenous Australians. Through our previous engagements, we have heard the need to pay close attention to matters related to Indigenous data, including Indigenous data sovereignty and Indigenous peoples’ access to Indigenous data that’s held by government to enable regional decision-making. We’d like to hear your views on issues specific to data about and relating to Indigenous Australians, by attending one of the following roundtables:

Broome: Tuesday 17 September

Melbourne: Thursday 19 September

Sydney: Monday 23 September

Shepparton: Wednesday 2 October  

Cairns: Friday 11 October

Each session will go for two hours and seek your views on:

  • ·The purposes for sharing data, including data sharing for commercial purposes.
  • ·The Data Sharing Principles and risk management, including privacy risks and consent.
  • ·Guidance materials, including the Best Practice Guide to Applying Data Sharing Principles.
  • ·How the DS&R Framework could work for different users in practice.
  • ·The role of the National Data Commissioner.
  • ·Accreditation principles and criteria.
  • ·Higher standards of protections for sensitive data.
  • ·Adequacy of proposed transparency and accountability mechanisms.
  • ·Methods for dealing with complaints, redress options and review rights.
  • ·Enforcement and penalties.

You can read our Discussion Paper or short summary online if you would like additional detail, though this isn’t necessary reading before the event. We will take time to go through the content during the roundtables, including the key questions for your consideration.

If your preferred roundtable session is booked out, please add yourself to the waitlist for that session. We will contact the waitlisted participants if places become available.

We understand that not everyone can meet with us face-to-face, so we will also be holding a webinar where you can pre-submit questions and have them answered by our panel. We’re expecting to hold this in November 2019, and we will be sending out more information about this event soon.

This won’t be the last opportunity for you to have your say. We welcome written submissions on the Discussion Paper, which can be lodged through our website and we will be holding another series of roundtables when the Exposure Draft of the legislation is released for public consultation.

We encourage you to forward this email on to anyone in your network that you think might be interested in our work. If you have any questions, please get in touch with us at This email address is being protected from spambots. You need JavaScript enabled to view it..

  pdf 05919 PM&C Public Consultation Flyer (356 KB)